About The Roadmap Project
Our Global Aim: Patients with chronic conditions and their families will receive support to promote emotional health as a routine part of excellent and equitable care.
The Roadmap Project is a national effort that seeks to do this by:
Raising awareness among patients, families, and clinical teams to validate, assess, and address emotional stress during routine care.
Building confidence and capability among clinical teams to assess and address emotional health needs, and helping patients and families feel safe sharing emotional health concerns.
Providing resources, connections, and strategies to patients, families, and clinical teams to help build a roadmap that improves the emotional health of children with chronic conditions.
Patients and families with chronic conditions cite emotional health needs as one of their top concerns.
The Roadmap Project began in 2017 with a request from three parents of children with chronic conditions to the American Board of Pediatrics: Please create a roadmap to improve the emotional health of our children.
Co-Designed and Co-Produced with Patients, Parents, and Clinicians
Our project began with leadership from patients, parents, clinicians, and psychologists who identified tools and strategies to improve emotional health among pediatric patients with chronic conditions and their families.
In 2021, The Roadmap Project completed a 16-month pilot collaborative with 11 teams from nine children’s hospitals to test the identified resources. Roadmap resources and strategies were successfully integrated into clinic workflows, inpatient settings, and educational activities for trainees.