PEER-TO-PEER
A number of local and national condition-specific peer-to-peer support groups are available. Connect with your subspecialist as they may know of a group that may be able to support you.
“People gravitate toward peer support because of its humanizing effect on our challenging health care system. And we love that it provides that personal connection to better understand physical and emotional impacts of chronic illness and it is 100% patient-centered . . . Peer-to-peer supports looks different for everyone, but that feeling of validation and understanding by someone who has walked in your shoes – we learn from each other and gain tools to live healthier lives as parents, patients, and siblings."
— Stacey Lihn, parent of child with single ventricle heart disease and president, Sisters by Heart
